Children and Young People latest news
29 March
Presentations now available for the National Survivorship Conference which was held on 28 March at Victoria Park Plaza, London.
View the presentations
2 February
23 January
National Cancer Survivorship Initiative:Teenage and Adult Aftercare Pathway
The children and young people cancer survivorship aftercare pathways have now been launched. The pathways have been produced and endorsed as clinical good practice following an extensive consultation process with input from clinical experts and cancers survivors. CLICK HERE to view the pathway.
16 December - presentations from 6th National Workshop held on 12 October
10 November - NHS Improvement – Cancer Children and Young people have been ‘commended’ in the Pfizer Excellence in Oncology award category for ‘Best Oncology Service Improvement’ surrounding the aftercare models for children and young people surviving cancer.
These excellent results were featured in the National Cancer Programme Bulletin (November).
12 October
Designing and implementing pathways to benefit patient aftercare: Continuing to build the evidence
This is the fifth in a series of publications from the NCSI CYP workstream. This publication draws together the evidence so far from the NHS teams testing the concepts of alternative modelsof aftercare for children and young people living with and beyond cancer and provides the initial evidence to help to support the commissioning of effective aftercare services in the future
Prototyping
The CYP Cancer Survivorship workstream is now moving in to the prototyping phase of testing.
Emerging from the testing work with our test sites we have identified four models of care:
- Traditional Primary Treatment Centre aftercare model
- A shared care model of aftercare where care is shared between the Primary Treatment Centre and the GP/Primary Care Services
- A nurse led model of care (that may include variations such as a telephone / text message model of aftercare)
- A self-management model of aftercare.
Along with these models of care the CYP patient pathways have been developed. These models of care will be tested along the patient pathway with four prototype test sites.
The four sites we are working with as our prototype sites are:
- Birmingham Children’s Hospital NHS Foundation Trust
- Bristol Royal Hospital for Children and South West Paediatric Oncology Shared Care Network
- Great Ormond Street Hospital for Children NHS Trust
- Yorkshire Cancer Network/St James’ University Hospital, Leeds
Two workshops with the prototyping sites have developed the framework to support the expected outcomes required by the end of September 2011. The six specific outcomes from these four sites are based on testing out the hypothesis that it is feasible across the 13 CYP Centers in England to achieve the following:
- An overall 20% reduction nationally in hospital based Outpatient follow-up appointments; that is – those patients who are already routinely being followed up
- To consider the potential to identify a percentage follow-up reduction in terms of clinically stratified levels of care and a focus on a reduction in unscheduled follow-up care
- To incrementally work towards achieving a 100% target over a five year period (tolerance level to be agreed) of patients being provided with a Care Plan and Treatment Summary, that is on a prospective basis for those patients ending treatment, entering long-term follow-up, and at the transition stage
- To define the models of care, and the key components of models of care
- To define practical and achievable Quality Key Indicators to support the evidence to commissioners to provide consistent, individualised care for children and young people living with and beyond cancer
- To capture robust evidence to inform the commissioning process.
Cambridge Exercise DVD
As part of the CYP Survivorship Initiative the Cambridge tests site has produced an exercise video. A clip from the video was presented at the CYP 5th National workshop in London on 29th March 2011. As a result of a focus group with young people the video has been developed by young people for young people. Watch the video.
Children and Young People Prototype Sites
The CYP Cancer Survivorship workstream is now moving in to the prototyping phase of testing. Emerging from the testing work with our test sites we have identified four models of care:
- Traditional Primary Treatment Centre aftercare model
- A shared care model of aftercare where care is shared between the Primary Treatment Centre and the GP/Primary Care Services
- A nurse led model of care (that may include variations such as a telephone / text message model of aftercare)
- A self-management model of aftercare.
Find out more about the prototyping testing phase.
Sheffield Children and Young People Survivorship projects
A summary of the Sheffield Children and Young People Survivorship projects can be found here.
Models of Care for follow up of children Cancer Survivors: a systematic Review has been completed and can be found here.
